www.srfcure.org 

 The Scleroderma Research Foundation (SRF) was founded in 1987 by Sharon Monsky, an entrepreneur, businesswoman, and scleroderma patient. Guided by her passion for a cure, we have become the largest nonprofit investor in scleroderma research  in the United States. 

Visit SRFCure on YouTube for great videos

https://www.youtube.com/playlist?list=PLWC8RJridQKmMuBMbJfna2XxCxw3Hr8RA

www.myscleroderma.org

EMPOWERING the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH

We are no longer affiliated with the National Scleroderma Foundation or their website. This is the only place to find out about what's happening and our activities in California!  

www.scleroderma.org

Our Three-Fold Mission of Support, Education and Research

• Support: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals and educational information.
• Education: To promote public awareness and education through patient and health professional seminars, literature and publicity campaigns.
• Research: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.

Visit their site for a nice video series on living with Scleroderma

 www.roadback.org

www.jsdn.org

 A support network helping children and their families with
juvenile scleroderma 

www.arthritis.org

 The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research. 

www.rehumatoidarthritis.org

 Rheumatoid arthritis (RA) doesn’t have to stop you from living your life. Although the symptoms of RA can be painful, there are many treatments and therapies to help you take your life back. 

http://www.newenamel.com/

We provide prescription-strength dental care products for use at home. The therapeutic regimen meets the recommendations for daily dental care for Scleroderma and Sjogren's patients, and because patients are buying directly from NewEnamel without a middleman, our prices are up to 50% lower than drug store prices for the same items. 

neha@nehashahnutrition.com

Neha Shah is a dietitian specializing in scleroderma. She overall has been specializing in gastrointestinal and liver disorders for the past 15 years, initially at Stanford Health Care and now, in private practice. Neha helps patients with scleroderma address nutrition issues that have interfered with eating well, such as swallowing difficulty, GERD, concerns with motility, and more. With her patients, Neha recognizes that all individuals have varying influences on diet and eating habits, in which all impact symptoms and food choices. She strives to develop a partnership with her patients to help them discover their own underlying motivations to help promote change to diet and nutrition. In a collaborative and ongoing approach, she will work with her patients to address obstacles that may serve as barriers to nutrition and develop personalized strategies to meet goals for overall good health. Neha can be reached at www.nehashahnutrition.com and through email at neha@nehashahnutrition.com 

Neha D. Shah MPH, RD, CNSC, CHES

There is more than one way to eat, let's find your way!

. Dr. Lorinda Chung, Scleroderma Center for Excellence at Stanford
https://profiles.stanford.edu/lorinda-chung-md-ms 

Dr. David Fiorentino, Stanford Dermatology

https://profiles.stanford.edu/david-fiorentino

Dr. John Clarke, Stanford Gastroentrogy 

https://med.stanford.edu/profiles/john-clarke

.Scleroderma Center for Excellence at Stanford.

https://srfcure.org/stanford-scleroderma-center-of-excellence/

Lorinda Chung, MD, MS
David Fiorentino, MD, PhD
Stanford University School of Medicine

Dr. Chung: The primary goal of the Stanford Scleroderma Center is to provide outstanding multi-specialty care for patients with scleroderma, with experts from Rheumatology, Dermatology, Pulmonology, Gastroenterology, Cardiology, Immunology, and Hand/Vascular Medicine working together to take care of each patient as a whole. At our Scleroderma Clinic, each patient is examined by a team, including physicians from Rheumatology, Dermatology, and Internal Medicine. We are also actively carrying out state-of-the-art research using tissue samples from patients with scleroderma and working with basic scientists to better understand what causes scleroderma, and to find markers in the skin or blood that can tell us which patients will go on to develop serious complications, like pulmonary arterial hypertension (PAH). In particular, we hope to develop a simple blood test to identify scleroderma patients who will ultimately develop PAH.

Dr. Andrew Gross, MD

Dr. Sarah French, MD

https://www.ucsfhealth.org/clinics/scleroderma-clinic

https://www.ucsfhealth.org/providers/dr-andrew-gross

https://www.ucsfhealth.org/providers/dr-sarah-french

The UCSF Scleroderma Clinic offers compassionate, comprehensive care for patients with scleroderma (also called systemic sclerosis), mixed connective tissue disease, Sjögren's syndrome and inflammatory myositis. Patients benefit from the diverse expertise of the clinic team, which includes rheumatologists, a dermatologist and a plastic surgeon who specializes in autoimmune disease.

Our doctors also work closely with colleagues in the Interstitial Lung Disease Program and the Advanced Heart Failure Program, enrolling patients in clinical studies of autoimmune lung disease and pulmonary hypertension.

• Scleroderma Clinic
  400 Parnassus Ave., Floor B1
  San Francisco, CA 94143
  DirectionsParking & TransitPhoneFax(415) 353-4407
  M-F, 8 a.m. - 4 p.m.

.https://www.cedars-sinai.org/newsroom/prominent-rheumatologist-to-create-scleroderma-program-at-kao-institute/

Francesco Boin, MD, is the new director of the division of Rheumatology and director of the new Scleroderma Program. Photo by Cedars-Sinai

Nationally recognized rheumatology expert Francesco Boin, MD, has been appointed director of the division of Rheumatology and director of the new Scleroderma Program at Cedars-Sinai. Boin is an accomplished and widely published investigator of autoimmune diseases, with a reputation for clinical excellence and a multidisciplinary approach to patient care.

https://www.cedars-sinai.org/health-library/diseases-and-conditions/s/scleroderma.html

Rheumatology Clinic

8723 Alden Dr #250
Los Angeles, CA 90048

310.423.6257  •  Get Directions

 Every branch of the Armed Forces relied on asbestos for decades. As a result, U.S. veterans account for 33% of all mesothelioma diagnoses. Since the Mesothelioma Veterans Center was established, thousands have turned to our team for information, how to take action after a diagnosis and to learn about treatment options. 

https://www.mesotheliomaveterans.org/prognosis/support/

 1330 Boylston St. Suite #400
Chestnut Hill, MA 02467
(800) 484-0115