Home Our Stories Minnie

My name is Minnie. I was diagnosed with Scleroderma in 1994 when I was in my mid-50's. The information I was given by my doctors left the impression that I would only live about another 5 years, devastating news for both myself and my husband. Fortunately, I had the strong support of my husband and network of friends that helped me through those times. I continued to teach 1st grade for the next two years when my health would allow, but had to take disability retirement when my kidneys failed.
I was on dialysis for about 4 months until my kidney function improved to the point that I no longer needed that treatment. My health has been relatively stable since then. I still have Raynauds in my hands along with some limitation of movement. I also take multiple medications to control my blood pressure and gastric reflux that along with the natural effects of the disease make the control of fatigue sometimes a problem. However, I find that if I manage my activities properly, I am able to live a relatively normal lifestyle.
My advice to others is to take one day at a time and enjoy life's blessings as they come. The fellowship and sharing of common experiences by members of the Support Group has been very helpful in coping with this disease.


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Researchers at Princeton University used DNA microarrays to characterize gene expression patterns in skin biopsies from individuals with a diagnosis of systemic sclerosis with diffuse scleroderma.