Home Our Stories
Kaelin

My name is Kaelin and I have had scleroderma since 2003. I first noticed that my fingers were started to turn blue, then I began to get painful sores on them that did not heal.

Read more...
 
Miki

Hi. My name is Miki. I was diagnosed with scleroderma around 1988. At the time, my symptoms were swollen fingers.

Read more...
 
Pat

My name is Pat. I was diagnosed with Scleroderma in 1976!!!! At that time was working in the Emergency Room at Kaiser Hayward as a Registered Nurse.

Read more...
 
Nancy

My name is Nancy. I have had Raynauds for at least 25-years, and Scleroderma for ten years. I was teaching at Independence High School in San Jose, when I was diagnosed with Scleroderma.

Read more...
 
Travis

I am Travis - my wife has had Scleroderma since 1994. Numerous things go through your mind when you discover that your loved one has a chronic disease that may kill her at any time.

Read more...
 
Mary Lou

Hi. My name is Mary Lou. I was diagnosed with diffuse scleroderma on 12/9/96. My symptoms started 3 months earlier in September with fatigue, anemia, and swollen hands, feet and lower legs.

Read more...
 
Minnie

My name is Minnie. I was diagnosed with Scleroderma in 1994 when I was in my mid-50's. The information I was given by my doctors left the impression that I would only live about another 5 years, devastating news for both myself and my husband.

Read more...
 


Upcoming Events

No events

Newsflash

If you have Scleroderma AND cancer, there is evidence that radiation may exacerbate your Scleroderma. You should check with your medical providers before treating with radiation therapy.